The Patient Voice: How patient feedback shifted the debate on access and effectiveness : IC Fireside Chats - Episode 11
This episode digs into a story where patient perspectives changed everything. Omar Ali and Adam Buckler discuss how Botox, as a treatment for migraine, didn’t initially look promising:
It was an injectable therapy in a space dominated by cheaper oral medicines.
The clinical data didn’t show a clear reduction in migraine frequency.
The cost and delivery challenges made it even tougher to justify to payers.
Who could help you with your next move in this position?
This is where the patient voice proved critical, giving real-world evidence that challenged conclusions of the original PREEMPT study — demonstrating how the treatment genuinely improved patients’ daily lives, work, and wellbeing in ways the data didn’t fully capture, which was that while the frequency of migraines didn’t change with the treatment, it caused patients to experience less severe attacks.
This feedback reframed the conversation, showing that effectiveness isn’t just about numbers — it’s about lived experience and the outcomes that matter most to those who rely on the treatment.
The takeaway is clear: patients are a crucial voice in shaping what access and value truly mean. When their perspectives are heard, they can transform how treatments are understood, evaluated, and brought to the people who need them most.
If you’re interested in how other stakeholders shape access and value, check out our earlier episode on stakeholder engagement, particularly empowering physicians — another key voice in making market access decisions work.
Disclaimer: This presentation is for educational and informational purposes only, and is not intended as legal or policy advice. This presentation is based on non-confidential intelligence. Views expressed by the speakers are personal opinions and should not be attributed to anyone else. No part of this presentation may be reproduced for commercial purposes without the express permission of Verpora.
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